Children's Hospital Patient

Ruby had her first pediatrician appointment today and the look on the physician's face when she walked in the room and saw Ruby was pretty funny. She could not believe how small she is. We are getting use to that response because we get it everywhere we go. Fortunately most people throw in a "She is so adorable" right after commenting on her size.



Her pediatrician was very concerned about her size and weight and especially since she has lost nearly 2 pounds since we got her. That was hard to understand as she has been eating so much more since we've gotten her. She is now down to 10 pounds 4 ounces. Quite discouraging for us as parents. We thought American food would fatten her up. Not the case. She told me she wants her admitted to Children's Hospital today for a complete work up; labs, GI, therapies, etc. and would probably get a feeding tube tonight. She explained to me that when a body is not getting nutrition and all of a sudden they get nutrition, the organs can shut down and she was concerned about that.

So we went home and packed our bags with her favorite toys, some clothes, and snacks of course and headed to Children's. Within two minutes of being in her room we were greeted with 3 doctors of different levels and 2 nurses. Over the next 2 hours we met several other professionals, none of which I will remember their names. The pediatric hospitalist told me she has never seen a 22 month old this small in all her years working. She said Ruby is off the charts (of course on the low end) and they will do their best to get her 'figured out'. I didn't really think she was a puzzle but they are all fascinated with her. Lab came to draw blood and I have never heard her cry so much, poor thing. They had to poke her two times as her veins were so small and somewhat collapsed. She is afraid of stethoscopes and pretty much every medical professional now. She was able to eat tonight and she ate more than I have ever seen. Must have been stress eating.

Tomorrow will be a big day. She will start with a nutritionalist, then GI, physical, occupational and speech therapy. I'm certain there are some I missed. They will be doing genetic testing as they have concerns about some type of dwarfism. That is not a concern of mine because I think she's perfect any size. They may have to put in an IV and an NG feeding tube (goes in the nose to stomach).

She fell asleep very easily tonight. Probably exhausted from all the crying. She is sleeping with one eye open and on me tonight. But no worries, I will be right beside her.  :)


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